I didn’t see that coming https://idstc.podbean.com New po this is a podcast for people interested in or suffering from optic neuritis and associated illnesses - but from a patient's prospect. When I started my journey with optic neuritis, there were very few resources on the Internet that could describe to me what I could expect both from the disease and the treatment and how it would feel.  So this podcast is designed to fill that app. 

I'm helped in each episode by my friend and collaborator Dr. Joanna Gould, who has a PhD neurology and helps explain some of the more difficult scientific topics.

They certainly isn't medical advice, but it's a medical experience that hopefully you can benefit from.

Contact us at boof@sighup.net. 

]]> Thu, 02 Apr 2026 14:01:00 +0100 https://podbean.com/?v=5.5 en Copyright 2026 All rights reserved. Health & Fitness:Medicine 1440 episodic For people interested in optic neuritis or associated neuropathies. Brendan Bouffler Brendan Bouffler No false https://pbcdn1.podbean.com/imglogo/image-logo/22166106/idstc-square.png I didn’t see that coming https://idstc.podbean.com 144 144 Second opinion to the rescue - and my new team Second opinion to the rescue - and my new team https://idstc.podbean.com/e/second-opinion-to-the-rescue-and-my-new-team/ https://idstc.podbean.com/e/second-opinion-to-the-rescue-and-my-new-team/#comments Thu, 02 Apr 2026 14:01:00 +0100 idstc.podbean.com/701e43bd-0437-3de9-9905-5e40d869f158 The first medical team were circling the drain around a diagnosis that didn't fit the evidence. On top of that the diagnosis they were pursuing was cancer.  These two factors made me lunge for a second opinion.

 

This is the episode where we talk about the heroic folks in my new team who got to work fixing my vision - one symptom at a time. 

]]> The first medical team were circling the drain around a diagnosis that didn't fit the evidence. On top of that the diagnosis they were pursuing was cancer.  These two factors made me lunge for a second opinion.

 

This is the episode where we talk about the heroic folks in my new team who got to work fixing my vision - one symptom at a time. 

]]> Brendan Bouffler false No 2219 5 full Christmas in Hospital - or "will Santa bring me a diagnosis?" Christmas in Hospital - or "will Santa bring me a diagnosis?" https://idstc.podbean.com/e/christmas-in-hospital-or-will-santa-bring-me-a-diagnosis/ https://idstc.podbean.com/e/christmas-in-hospital-or-will-santa-bring-me-a-diagnosis/#comments Mon, 30 Mar 2026 16:39:13 +0100 idstc.podbean.com/8dd9fc96-1d86-35f0-b9c5-683383fa94d7 Christmas and new year in hospital wasn't exactly part of my optimal plans, but then again nor was optic neuritis. It was all worth doing in the search of a diagnosis and so in this episode, we talk about that experience and what came after in the quest for figuring out what was the cause so we could then fix it. 

]]> Christmas and new year in hospital wasn't exactly part of my optimal plans, but then again nor was optic neuritis. It was all worth doing in the search of a diagnosis and so in this episode, we talk about that experience and what came after in the quest for figuring out what was the cause so we could then fix it. 

]]> Brendan Bouffler false No 1738 4 full When something goes seriously wrong When something goes seriously wrong https://idstc.podbean.com/e/when-something-goes-seriously-wrong/ https://idstc.podbean.com/e/when-something-goes-seriously-wrong/#comments Sat, 21 Mar 2026 12:04:12 +0000 idstc.podbean.com/ebc12b36-da82-315d-8e6e-c1a75a5cfef5 This is the first of three episodes where we track the whole course from diagnosis to final treatment jump, jumping between a couple of hospitals and lots and lots of special specialists to find an answer. In this episode, we cover the initial diagnosis which fortunately turned out to be wrong and we discuss  how  to navigate the medical profession when it's not making its best judgments or decision decisions.

 

If you know anyone going through this, please pass this episode onto them. It could help a lot.  

]]> This is the first of three episodes where we track the whole course from diagnosis to final treatment jump, jumping between a couple of hospitals and lots and lots of special specialists to find an answer. In this episode, we cover the initial diagnosis which fortunately turned out to be wrong and we discuss  how  to navigate the medical profession when it's not making its best judgments or decision decisions.

 

If you know anyone going through this, please pass this episode onto them. It could help a lot.  

]]> Brendan Bouffler false No 1925 3 full Becoming your own investigative journalist Becoming your own investigative journalist https://idstc.podbean.com/e/becoming-your-own-investigative-journalist/ https://idstc.podbean.com/e/becoming-your-own-investigative-journalist/#comments Wed, 11 Mar 2026 14:03:35 +0000 idstc.podbean.com/a24a26f3-f224-39a4-a039-53a844e6e753 We talk about what optic neuritis is, where it comes from what its possible causes.

We also discuss some other advice about things that you should know from the outset and maybe some good habits you can develop from the beginning that will help you much much later on if the disease turns out to be not just a simple case.  

]]> We talk about what optic neuritis is, where it comes from what its possible causes.

We also discuss some other advice about things that you should know from the outset and maybe some good habits you can develop from the beginning that will help you much much later on if the disease turns out to be not just a simple case.  

]]> Brendan Bouffler false No 2036 2 full Intro to our podcast and our presenters Intro to our podcast and our presenters https://idstc.podbean.com/e/intro-to-our-podcast-and-our-presenters/ https://idstc.podbean.com/e/intro-to-our-podcast-and-our-presenters/#comments Wed, 11 Mar 2026 13:46:32 +0000 idstc.podbean.com/07f8ff4c-a403-3e11-b82d-2fc215823c21 A brief introduction to the podcast and the two presenters: Brendan Bouffler (the patient) and Dr Joanna Gould (our captive scientist).

]]> A brief introduction to the podcast and the two presenters: Brendan Bouffler (the patient) and Dr Joanna Gould (our captive scientist).

]]> Brendan Bouffler false No 187 1 trailer